Brent & Harrow Sickle Cell & Thalassaemia Liaison Committee

Aims & Objectives

To provide a multi-disciplinary forum bringing together the agencies, professionals, and users involved in the care of people with Sickle Cell and Thalassaemia in Brent and Harrow.
To advise the commissioners and provider units on all aspects of services for people with Sickle Cell and Thalassaemia.

That the purchasing authority and provider units take into account the views of those using the service, expressed both individually and collectively.
That the Sickle Cell and Thalassaemia services and clinical practice are based on reliable research evidence and that all staff are given adequate opportunities for regular updating anf ongoing training.
Good communication between users and the different professional groups involved in policy making and the provision of Sickle Cell and Thalassaemia services, as well as between the different professional groups, including Social Services.
The optimal use of professional skills and resources. This includes ensuring effective multi-disiplinary working in the delivery of care for people with Sickle Cell and Thalassaemia.
Information: to receive regular updates in numbers and epidemiology.
Agreed operational policies, protocols, and guidelines for the provision of care, which are regularly reviewed.
Contracts for the provision of Sickle Cell and Thalassaemia care which reflect, and are devised to meet, the needs of the local population, including those with special needs.
Formulation of systems for clinical audit and quality assurance.
To develop and co-ordinate means for promoting understanding of Sickle Cell and Thalassaemia. in:

The wider public

Relevant professionals (e.g. in health, social services, and education)

People with Sickle Cell or Thalassaemia trait or condition and their families

Monitoring: Inventory of what is happening/tracking progress and what has happened to "old issues" that have not progressed.